Evelyn and I were just looking at some pictures from www.cfcsyndrome.org and were looking at the boys that resemble Jackson. Here's the link if you'd like to take a look. So amazing how these little angels look so similar.
CFC International pictures-confirmed cases

The newsletter also came out recently. I've posted that link here in case you'd like to read up on any new information regarding CFC International. CFC International Newsletter-July 2010

Jack slept through the night last night, Monday. Phew! He's been fussy most of the day though. We're back on the antibiotic and I've also given Jack some ibuprofen to help him sleep. Massive amounts of gas have been exiting from his belly. On a brighter note, I'm now waiting for insurance to pay for Jack's Ergocalciferol. Ha! Can you read that? Ur-go-kal-ciff-ur-all. That's a fun one when I tell it to a nurse and she's trying to write it down. I usually end up spelling it. This medication is the vitamin D2 supplement. It's been working great but now we need a refill, and it's $102 for a 6 month OTC supply. It's a medical necessity because Jack's levels are low when he isn't getting the medication.We are waiting for insurance to receive a letter of medical necessity, and send us, as well as the pharmacy, the approval. Ugh. . .

That is all. Oh, and we met the family down the street with two boys, the same ages as Evelyn and Jackson. The younger boy has Down Syndrome. The family was/is wonderful! We have so much in common and the kids all played well together!