This picture is of Jackson's extension. It is the tube that connects the mi-key button (feeding tube) to the feed tubes and pump.
The comforter was dripping with formula.
Tuesday, February 28, 2012
Double digits
Jackson is on his third ear infection since his big tonsillectomy/adenoidectomy/nasal septum repair/nasal passage restructuring surgery last summer. We had the pleasure of visiting his ENT yesterday. Two doctors looked in his ears; the resident who took care of Jack after his surgery, and the attending ENT. Both had trouble seeing his ear drums because of the wax buildup. I was asked questions in which I didn't know the answers.
1. Have his ears been draining? I said no because they haven't been wet. I didn't really know though. Jack always has his fingers in his ears.
2. Does he get upset when water gets in his ears? I said no. I didn't really know because the only time water gets in them is during a bath when I wash his hair. And again, Jack's pain tolerance is so high...I usually can't tell if he's in pain, except for this last weekend when he was crying for no reason. He has also been pushing on his head a lot and using his dnz-vibe on his head.
3. Have his ear drums ever perforated? I said I think one did, but I didn't know which one. I have gotten so completely tired of writing EVERYTHING down in his binder, I have stopped. I think I just learned my lesson.
The decision is for Jack to get ear tubes placed. His ear canals will be cleaned well before the tubes are placed. Also, before the tubes are placed,the doctor is going to run a scope to look at Jack's nasal passages to see if they have narrowed and to see if any adenoids have grown back. This way, if needed, repairs can be made at the same time.
Double digits. Surgery #10. I know it's a simple surgical procedure and it's non-invasive, but it still involves anesthesia and that's always a risk. I don't count the MRIs (those also involve general anesthesia). I am beginning to wonder if Jack has trouble with his surgeries because of the pain meds given during the procedure. I've said that before. I assume no pain meds are given for tube placement.
1. Have his ears been draining? I said no because they haven't been wet. I didn't really know though. Jack always has his fingers in his ears.
2. Does he get upset when water gets in his ears? I said no. I didn't really know because the only time water gets in them is during a bath when I wash his hair. And again, Jack's pain tolerance is so high...I usually can't tell if he's in pain, except for this last weekend when he was crying for no reason. He has also been pushing on his head a lot and using his dnz-vibe on his head.
3. Have his ear drums ever perforated? I said I think one did, but I didn't know which one. I have gotten so completely tired of writing EVERYTHING down in his binder, I have stopped. I think I just learned my lesson.
The decision is for Jack to get ear tubes placed. His ear canals will be cleaned well before the tubes are placed. Also, before the tubes are placed,the doctor is going to run a scope to look at Jack's nasal passages to see if they have narrowed and to see if any adenoids have grown back. This way, if needed, repairs can be made at the same time.
Double digits. Surgery #10. I know it's a simple surgical procedure and it's non-invasive, but it still involves anesthesia and that's always a risk. I don't count the MRIs (those also involve general anesthesia). I am beginning to wonder if Jack has trouble with his surgeries because of the pain meds given during the procedure. I've said that before. I assume no pain meds are given for tube placement.
Friday, February 24, 2012
We want to go to Disney World
Jackson's CFC International Medical Conference for August, 2013 will be held in Orlando, FL!!! We are trying to raise funds to get the family to Orlando to attend the medical conference and visit Disney World and Universal Studios.
If you are interested in helping us out, the link below takes you to our fundraiser.
FundRazr
We are also looking for other fundraising ideas. Feel free to share your ideas.
This will probably be the only chance for our family to visit Disney World.
Many thanks!
Becky
If you are interested in helping us out, the link below takes you to our fundraiser.
FundRazr
We are also looking for other fundraising ideas. Feel free to share your ideas.
This will probably be the only chance for our family to visit Disney World.
Many thanks!
Becky
Monday, February 13, 2012
Valentine's chocolate
Jack enjoyed his first tastes of Valentine's Day chocolate. He has been shouting "caw-cate" (chocolate)!
Friday, February 10, 2012
One month in preschool and another amazing milestone!
Jackson has been in preschool for 1 month. This morning, I took Jack to his parent-teacher conferences. I thank God for bringing the flip video camera. Jack showed off his new trick! He's only been doing it for 2 days!
I am especially fond of the next video! No crying!!!!!
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