Jackson has his adenoidectomy and tonsilectomy on Tuesday, June 14th. He is also having a sedated echo at the same time. I got the pre-admission phone call yesterday, Thursday. I was on the phone with the nurse for an hour! Wow! We had to go over all of Jackson's history:
Birth history (6wks early, emergency c-section, transfer to NICU, oxygen at birth).
Genetic syndrome (Cardiofaciocutaneous Syndrome)
Weight issues (failure to thrive) skin (rough, red, like sandpaper)
Neurological (history of seizures, global developmental delay, CoQ10 deficiency, muscle tone (hypotonia-low muscle tone), arachnoid cyst and enlarged cisterna magna at the posterior fossa, large ventricals.
ENT-Astigmatism, intermittant strabismus, narrow ear canals, deviated septum, high-arched palate, long palate, trouble swallowing, doesn't eat by mouth.
Cardiac history-ASD (atrial septal defect), murmur, history unknown-hence the sedated echo
GI-Gastrostomy tube-placement in April 2009. dysmotility, inverted short duodenum.
Urological/Renal-Bilateral hydronephrosis, right pyeloplasty and UPJ (ureteropelvic junction obstruction), two ureter stents, sludge removal from right kidney, left inguinal hernia repair
Anesthesia history-malignant hyperthermia, fevers after surgery even with MH OR setup, O2 low after one surgery (Jack was grey and limp and needed 3Liters of O2)
Medication-CoQ10, Poly Vi Sol, Cytra-K Oral Solution (all through G-tube), Nutropin AQ Growth Hormone
Phew! Yah. that took an hour.
I got a phone call this morning from the pre-admission nurse this morning. She spoke with Anesthesia. Jackson is no longer having surgery in the Pavillion at St. John's (where outpatient procedures are performed). His surgery has been moved to the OR in the hospital.
I am very happy about this. I am still nervous but happy the hospital is taking good care of Jackson.
No comments:
Post a Comment