No food by mouth?

Phew...
That's what I have to say about that.
I have been talking with the GI nurse.  She had a talk with the doctor about the issue of no food by mouth. Jack has been cleared for tasting as long as we bypass any milk products. This means the obvious tastes like ice cream, cheese, and yogurt. We must also restrict tastes like Goldfish crackers, Doritos, pudding, sourcream and onion chips, ranch chips, ranch sauce, and anything with a milk protein (whey or casein). Of course, something besides milk proteins could be causing the EoE.  It could be a meat or poultry protein or: An additive like a dye; corn syrup; canola oil; coconut or palm oil. I got that list from the ingredients in Jack's current formula diet, which Compleat Pediatric. I don't know if someone can be allergic to vitamins...the formula is packed with those as well. The doctor is starting with the basics. Milk lactose and milk proteins.

I cannot express in words how happy I am that we don't have to hold back tastes! Each meal we would sit and say, "what are we going to do? He keeps asking for food. How can we do this to him?"

The new formula has been ordered and is awaiting insurance approval. Jack will need 16-20 cans per month, at a cost of $169/case of six. Hopefully we can start it by the end of next week.

Here's a fun video! I love moments like this!

https://www.youtube.com/watch?v=A_lf1GSIjZY&feature=youtube_gdata_player