And though he be but little he is FIERCE

I have to think back to where I left you... It was Tuesday... Yes?

Jack never tried any Pedialyte that night. He spent half of the night (starting at 10:30pm) in discomfort and eventually we had to intervene with Zofran and Tylenol. He quickly calmed and eventually slept...at 4am.

Wednesday morning Jack awoke at 7am to vitals and then labs and then doctors... Boy was he mad! I would be too! Wednesday was a good day in terms of how Jack is feeling. Isolation was lifted. We ventured out into the hallway a couple of times. The first trip took us to the playroom. Lots of stuff to do there. We only stayed for a couple of minutes, long enough to get a puzzle. Jack wheeled himself back to his "hospital bedroom." The second trip took us to a small library. We found four books to bring back and read.

Pedialtye was started back up that afternoon. This time we started extremely slow. So slow, he only received 1 tsp per hour for two hours and then took a two hour break, repeat. 

We upped to 2 tsp per hour Wednesday night but had to stop due to discomfort. Then... The feed stopped completely at midnight. No, not for belly trouble. Jack was NPO (no food by mouth) for an upper GI in the morning. 

Why the upper GI series? Jack's GI doctor finally came by. She's been out of town. Boy am I glad that she's back. She is on the same page as me. Dr. Utterson ordered a new medication for Jack's face. His cheek is all burned from stomach acid from the vomiting episode and hasn't been healing with the current medications. She is also concerned that Jack's belly isn't recovering as quickly as it usually does. She mentioned something called an intestinal pseudo-obstruction. She discussed the possible need for a G-J tube (gastrostomy-jujunostomy) where the feeding tube bypasses the stomach and feeds the intestine directly. We are especially hopeful that we can start nutrition soon because Jack hasn't eaten since Friday. If we run into too many problems we might need TPN (total parenteral nutrition fed through IV) while we figure this out. 

So it's Thursday. Day 6. Jack had the upper GI series this morning. I am awaiting word on the results. We've started the pedialye at 2 tsp (10ml) per hour for two hours then a two hour break. We'll go to 15ml the next time if he does well. 

Jack is sucking all flavor from some bacon. It's absolutely disgusting and he is happy. He has a ton of gas. 

Next time you hear from me I plan to share good news.