Jack, where are you?

Ok. Where is my child! First. . .I shut his food off at 3am. He didn't wake up until 9:30am! And he was happy! He usually wakes up screaming. Nope, he was smiling and playing. I took him straight to his highchair after I changed his diaper. I placed Cheerios on the tray and brought out some new baby food I bought at the store.

That's right! See that picture? Jack opened his mouth for the food, only a small amount each time, but he opened his mouth like 5 different times!
He even swallowed it, along with the Cheerios! He actually ate the food! Only one sample of juice this morning, but I am in no way complaining.

I'm not sure what else to expect, but anything else that happens today will be a blessing.

Oh, and we are no longer moving into Jason's school district, but we are moving into a new home on the north side of Decatur. We'll be moving within the next 4 weeks!

is this my child?

So, I'm not really sure what's going on, but I'm questioning my son today. That's right. . .check out that picture!

1. This is from this morning. I was so shocked I had to take a picture. Jack sat in the cart, leaned forward, and held on to the handlebar! I don't know what to think about this. . ."Two steps forward and one step back"? We've had some wonderful things happen lately with Jack, and then the results from the echo came back.

He's such an angel. Look at those finger.

And then we got home for occupational therapy and Jack shut down and wouldn't do anything!


Figures!

sippy

I was almost in tears of bliss this afternoon. Jack drank from his sippy cup! He likes grape juice! I would offer his sippy to him and he would open his mouth, waiting for me to bring it to him. Chomp Chomp Chomp away with his teeth, getting the juice out. Such a joy. It felt so wonderful to be able to feed Jack.

and so it goes. . .

Jack had his echocardiogram a couple of weeks ago. I just got off of the phone with his pediatrician, who read me the findings. I am currently on hold, awaiting an appointment for Jack to see a pediatric cardiologist.

To make this more interesting, I'm going to provide you with the results from all 5 echocardiograms, starting with the first one.

February 2009, 1 month old: Bicuspid Aortic Valve, possible coarctation of the Aorta and Aortic regurgitation, heart murmur. Decatur Memorial Hospital.
March 2009, 2 months old: normal Aortic Valve, some slight coarctation of the Aorta. Cardinal Glennon Children's Medical Center, St. Louis.
March 2009, 2 months old: slight aortic valve stenosis, slight pulmonary valve stenosis, heart murmur, "aortic valve might have 3 valves, which is normal, but we can't quite tell." St. Louis Children's Hospital.
September 2009, 8 months old: heart murmur. slight PFO (hole in heart). St. Louis Children's Hospital.
April 2010, 15 months old: bicuspid aortic valve. small PDA. hard to see aortic arch so unable to rule out aortic coarctation. Decatur Memorial Hospital.

The pediatrician wants me to see the pediatric cardiologist in Springfield. This is the doctor that performed and read the perinatal echocardiogram when I was still pregnant with Jackson. She isn't too worried about the bicuspid aortic valve,What is a Bicuspid Aortic Valve?
but has some slight concerns about the PDA (Patent Ductus Arteriosus).
What Is Patent Ductus Arteriosus?
She said that is should close shortly after birth and definitely by 1 yr old. He may need to have it closed. I'm not reading too much into this, but if Jack needs surgery I'll be driving to St. Louis because I'm not very happy, or comfortable, with the hospital in Springfield, which we've discussed in the other blogging application I was using. However, the problem with that is, the echo that was performed in September at St. Louis was poo-pooed by the specialist. They didn't want to see Jack back, ever. They didn't read his recent reports and thought that Jack had a different syndrome. DARN THEM!

transitioning

Welcome to my new Blog. This site is as new to me as it is to you. I've decided to switch services because of the many problems I keep running into with the prior blog service we are all used to.

To begin, Jackson ate Cheerios twice on Tuesday. The first time while sitting in his Bumbo. He did GREAT!

The second time while sitting in his loaner KidKart at Olive Garden. He was a little angel at the restaurant too!

I'll leave it at that for the time being. Such a big boy!