Thursday, August 6, 2015

Touching video

I accept that Jack is Jack and that is that. Sometimes I forget how quickly things can change with him. Sometimes I forget to celebrate the good days. Sometimes I need this reminder of what Jack has but not who he is. 
Beautiful children. 
https://vimeo.com/6433816

Monday, June 15, 2015

Is it really already June?!

Ok. So I know I am soooooooooo behind on my blogging. Life has truly gotten in the way. 
I've missed a ton of important events and I guess I can't backtrack to every single happening. I can share pictures with little stories. I'll do that. At least this will get posted today instead of in about three weeks! The pictures will NOT be in chronological order. 

June 2015. Jack and mom in the pool.


May, 2015. Jack and his wonderful aide, Lisa, at the Kindergarten Tea.


May, 2015. Mrs. J (Jack's Kindergarten teacher) and Lisa (Jack's wonderful aide) pose with Jack. Jack won the Character award for courage.


May, 2015. First Christian Church of Springfield, IL hosted LLCC Big Band for an end of the year concert and CFC International Fundraiser.


May, 2015. Jack and mom at the concert.


April 17-May 2, 2015. Jack getting some fresh air in the rooftop garden at St Louis Children's Hospital. Jack was admitted for failure to gain weight. We worked on finding a different formula and different way to feed Jack. He did get quite sick in the beginning of the trials but in the end he is doing ok.  We switched from a G-button to a GJ-button. We now feed formula directly into Jack's intestines. He eats 20 hours a day and gets small breaks from the tubes throughout the day. We are still working on calories and formula. Jack still isn't gaining weight. Go figure. No surprise to me. He's happy. That's most important!


April, 2015. Grandpa Steve and Grandma Barb visited Jack at the hospital.


April, 2015.  Evelyn and Katie visited Jack at the hospital.


March, 2015. Jack's spring Kindergarten picture. 

 
March, 2015. Jack and Mrs Melton (special Ed teacher) working hard. 


March, 2015. Jack has  groupies everywhere her goes!


March, 2015. Working hard in Mrs. Melton's class. 


March, 2015. Helping dad baby proof by hanging the tv on the wall. 


March, 2015. Acting like he's eating an apple. Those really are his bites! He spit out each piece. Silly boy!


February, 2015. Jack participated in the Pawnee Youth Basketball League. He had fun throwing in the ball and even got to make a couple of aided shots. 



January, 2015. Silly boy!


January, 2015. Celebrating Jack's 6th birthday at school with his Kindergarten classmates. Pudding!


January, 2015. Working for Ms. Carolyn during Physical Therapy. 


January, 2015. Fun times at the mall!


January, 2015. Lost both front teeth!



December, 2015. Pawnee Grade School's Christmas Program.


January, 2015. 


Trying to play his cake!