I tend to think backwards lately. Well, actually, most of the time. It's easier for me to recall the craziness that is my everyday life! I'm going to make every effort to go in order of events...you have been warned!
There's a chance that this post will be long. I have so much to share!
Ok. Here goes.
Jack recently saw Orthopedics for his annual spinal and hip x-rays as well as a new script for his AFOs. His hips look good! We see a lot of hip dysplasia with CFC Syndrome. I'm please to know that this is something we don't have to worry about. Jack's spine still has a curve. It is apparent to the therapists with touch. I could see it on the x-ray this time. Scoliosis is also very common with CFC. I just took Jack to get his feet casted for the new AFOs. We are going with the psychedelic rainbow design again. Jack doesn't understand choice questions when he doesn't already know the outcome. I started to ask him if he wanted rainbow braces again or something else. He easily said rainbow brace. It quickly turned to a listing of all of the different colors; red brace, blue brace, black brace, green brace, etc. I decided we'd better stick with what we know.
Halloween came and went. We don't do too much celebrating. We've never gone house to house. It's always too cold, or too windy, too rainy, etc. I let the kids dress up and we trick or treat at our church. Maybe once we move we'll be able to go door to door. Only time will tell. Anywho, Evelyn was a cat, Katie was Minnie Mouse, and Jack was Cookie Monster. I went one-up with his costume since he was in his wheelchair. I designed a cookie jar (last minute) for Cookie Monster to be sitting in. There's an entire community of TOTALLY AWESOME costumes created around wheelchairs!
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| Jack really liked having the bucket at his feet. He carried that Snickers bar in his hand all evening! |
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| Cookie Monster! |
Jack had his wheelchair evaluation so we could apply for a new self-propelled wheelchair. With Jack entering Kindergarten next fall, we need to consider his needs. His current chair is big and bulky. It has served its purpose but it's time to let Jack be at the same level as his peers. He'll still use his walker and we'll be working hard on walking. However, it's time to give him some freedom. Much to my surprise, and the therapist's, Jack quickly figured out how to propel himself in the sample chair. It got to the point where Jack ran himself into the stroller and his current wheelchair! He was giggling! The therapist was even able to assist Jack in getting in and out of the sample chair.
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| What an awesome chair! I sure do home insurance approves this! Jack could have so much freedom! |
Jack is at his current school for one more week. He's doing AMAZING things there. I received a picture that almost floored me.
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| No hands! |
Last week, Katie was snacking on applesauce. Jack decided that he wanted some as well. He licked the spoon many times. This picture is silly!
We've had this bounce and spin zebra since 2007. Jack hasn't had an interest until NOW!!!
Finally, the blenderized diet seems to be going well! Jack was weighed last week. He has gained half a pound! We are trying a higher calorie blend at the moment; more calories and less volume. So far so good. We had a vomit incident this evening. I'm guessing it's because Jack is struggling to poop. I only gave him his Generlac once a day for a couple of days instead of twice a day. He recently started to say "owie" when he hurts. He was telling me he hurt and next thing I know, out it all came...poor boy.
Anywho...that's what's been up! We move in 2 weeks!!!!!!!
