Big Brother Love

Jack did an amazing big brother act of kindness! I had turned Katie's swing off so she would wake up to eat. When she woke up she started to fuss and cry a bit. Jack raced over (bottom scooted) to her swing and started to swing it by hand. So special!
I swear the other day he started to sing "Twinkle Twinkle" to her when she was fussing. And...every time we get into the van, as I buckle Jack up, he asks, "baby? Baby Katie? Carseat?"

He is on a topical steroid/antibiotic for his eye. It might be an infection.

New backpack...new problems

Jack got a new backpack for his feeding pump today! I am so excited! Jack...not so much. He is wearing it right now for the first time and has thrown 4 fits so far. We still have 35 more minutes left for his feed! He has only travelled one foot with the backpack on but it's a start. Pumpkin Pack

In other news, I emailed Jack's Ophthalmologist pictures of his eye today. There is some sort of light white spot on Jack's left pupil. It doesn't move. Sort of odd. In the picture you will see a faint white spot in the lower corner of his pupil.

Current CFC International Newsletter

CFC International September Newsletter

Couch Getter Offer

Well do I have some wonderful news that can be viewed in VIDEO FORMAT!!!!
Jackson can officially get down from the couch all by himself! He doesn't go belly first like we would teach a 'normal' kid. We can't let him because of his feeding tube. We have been working on it a long time and he finally achieved status of 'couch getter offer!'
You will see two videos. The first is of Jack sitting on the edge of the couch. He slowly scoots to the end of the cushion and then using his arms ( I can't believe he has strong muscles) to work his feet to the floor. I missed the actual transition to the floor which is why there is a second video.

Enjoy! We are so very proud of Jack!